March 6, 2019 was my last day of working. I loved the company I worked for. I loved my managers. I loved most of my coworkers. I loved that the company made so many, continued accommodations for me as my MS, Brain Fog and Fatigue worsened over the years. It’s been more than 2 years now since I’ve worked. I miss it. I miss feeling useful and putting together reports. I miss that at one time my shit was so together I was actually assigned specific clients. I mourn that before I stopped working I only did internal reports and could no longer work with the clients. So while I’m applying and working towards disability, it’s not because I don’t WANT to work anymore, it is because I CANNOT work anymore. I get confused during conversations. I use dictation for texts and posts. Covid has made communication even more difficult for me because not only do I require a hearing aid I rely on reading lips. Masks make that impossible.
Not everyone has a clear and visible disability. Since it is still #msawarenessmonth I felt the need to clarify why this particular woman can no longer work because of #MS.
One thought on “#ThisIsMS”
Dear one, you do not need to clarify why you can no longer work. I am so tired of people with chronic conditions having to defend their illnesses and why they cannot work or be available. You hit so many issues that I am having like the hearing because of the mask and the autotype for texting. It has gotten me into trouble…Anyhow, I hope things get better for you. Take care.
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