Knowing When to Stop

Knowing when to stop has never been something I’m good at. I’m going to go full steam ahead, 125% until whatever it is, is done.

The problem with that is MS doesn’t give a shit what you want to do. Knowing when to stop can be the difference between partial completed and ok or having it done but being useless for days.

This has been a struggle for me since diagnosis. Whether it was work, household chores, physical therapy, it doesn’t matter. You tell me it would be better if I could do these balance exercises twice a day I will, until I can’t see properly and can barely move after two or three days because my body and my brain have communication issues.

I’m not going to lie, I still have problems with holding back. Anyone who has MS can tell you some days are better than others. Don’t make it harder on yourself by pushing through when you should be taking a break.

4 years since diagnosis and I’m still learning, my disease is ever changing though so I have to keep adjusting. Today I did the dishes, then I rested, a lot, I also got a migraine. Yesterday though I was in a house full of people for 30 minutes before trick or treating and I should have taken that into consideration today.

If you’re reading this and don’t know MS or anyone with it you probably think I’m lazy for only doing dishes, but I’m not. I managed to give myself a migraine by trying to get something done today instead of resting my body and brain.

Take time, take breaks, chronic illness sucks hard. It’s a learning curve and I am right here with you, learning too.

One Month on Keto so far

I started Keto on September 7th for my brain health for MS. (healthy high fat diets have proven to be good to neurological diseases) I have been asked several if it is helping, that’s not an easy question to answer.

I have not noticed a difference in my functioning since starting keto, my energy level is still low, my pain is still there (depends on what I have done during each day), my words still don’t work.

What I have noticed is that my hormones (due to PCOS) have leveled out (fingers crossed it helps my alopecia). I have lost 13.61 pounds and 13 total inches.

When I nerd out at my next doctor appointment I will have a bunch of blood work done to see if it has changed anything on that level. It’s hard, especially because I love sugar, but it’s manageable and since it’s a lifestyle change for me and not a diet I am allowing myself the occasional treat so that I can sustain this change long term.

Exhausted but Unable to Sleep

I’ve had trouble sleeping for as long as I can remember. My mother tells me my whole life. I’m constantly tired because of my MS and when I get a chance I nap.

By the time I get into bed at night all I want to do is sleep. I have numerous medications for sleeping, pills to keep my nerves from being assholes, pills for back pain, pills for my spastic legs, other pills for things I can’t remember right now and cream for back pain.

You would think I’d have no problem falling asleep with all that assistance, and yet here I am, on my phone because while I’m exhausted and yawning I’m not “sleepy” yet. Usually I can listen to podcasts or play a matching game and that will help.

It can’t just be me, my husband falls asleep easily and my boys struggle some days (probably thanks to my genes).

Do you have issues sleeping or getting your kids to sleep? What works, I’m hoping for suggestions to try.