Multiple Sclerosis and Germ Season

One of the worst things about MS treatment is the fact that it has to shut down your immune system to keep your body from attacking the brain.

Due to treatments I have had an uncountable amount of colds that turned to sinus infections since 2014. I had sinus surgery in 2016, hoping that fixing my double deviated septum and small sinus pathways would reduce the frequency of sinus infections from the inflammation caused by colds. It did not, it did however make it so that I was unaware when I had a sinus infection until very far in because my face didn’t start to throb as soon as it had before as a result of all the extra space I had made.

Recently I got sick suddenly and after 3 days of high fever I finally decided to go to the doctor. By the day I went in my fever was up to 102.3 and I was seeing things. Looking back I probably should have went to the ER but I HATE the ER. I spend enough time there already and I was afraid if I went to the ER they would admit me.

Even after taking Tylenol I still had a fever when I arrived at the doctor. They did a Flu test, thinking that was a logical assumption with my comprised immune system and my symptoms. Though I do get the flu shot every year since 2006. 12 minutes later, it was not the flu. It was determined I had “communal pneumonia”.

Even after taking 2 types of antibiotics 3 times a day for 10 days I still felt terrible. My lungs no longer felt like sandpaper when I coughed but my fatigue was worse, the cough and congestion still there. Pain breathing anytime I exerted any type of effort.

Three weeks later and I am still recovering. That is the price of treating MS, everything takes longer to heal. It’s not something you can avoid when you have kids either, they have to go to school and they are constantly around other kids who may or may not be sick. They come home and you cannot decontaminate them fast enough or well enough to catch every possible thing.

So during winter I dread every sniffle and cough, is this allergies or has my child been given some terrible germ that will eventually wreak havoc on my already terrible immune system.

Hang in there, but if you have any good tips please let me know because I am so tired of getting sick!

What Do We Want From the Next Generation?

Here’s the thing, people are divided. It seems that all the same issues that have been going on for the last 60 plus years are still happening. We need to decide as a community what we are expecting the next generation of adults to be.

One person alone cannot make the changes needed, but each person working together as a group can. Do we want our children to be name calling, angry grown-ups? I don’t, I tell my kids to treat people how they want to be treated. Yet, you watch the news and people are trash talking politicians, celebrities, and people in general are doing the same thing on social media.

How can we as the parents of the next group of grown-ups expect them to be better than we show them. I try to keep the news off around my kids, yes I want them to be informed but they do not need to be subjected to constant negativity. In fact, I don’t either, I have numerous health issues that make staying positive hard enough without surrounding myself with all the negative talk.

Each person has basic human rights, they should be free to make choices for their own bodies and love who they want as long as those things are not hurting anyone. Nearly 100 years after women got the right to vote and we are still struggling for equality. Almost 60 years after Civil Rights marches and laws we still do not treat people of different races the same as everyone else. People are the SAME!

We are all made of the same parts, we all want the same things in life. Regardless of beliefs, gender, color and orientation. That is what I want my sons to know. I want them to be adults who fight for everyone’s rights to be loved and respected. I want them to treat all people they interact with how they want to be treated. I want them to be kind, understanding and compassionate. I want my sons to be men that can be looked up to. Alone we cannot change things, but together, as parents of the next generation we can shape who they will become and hopefully society in the process.

 

Sensory Overload

Back in my teens and early twenties noise did not bother me. I used to listen to loud music, have the TV on in the background while I studied or wrote it was fine. Now, it makes me crazy and not in the sense that it is just annoying because I am old.

I am in my thirties, I am not sure if it’s related to my MS, Meniere’s or both as people afflicted with either complain of sensory issues. When I am trying to focus on one thing and there is noise or talking or a loud TV, music anything, I get actual nerve pain. This week I was helping my youngest son with his reading homework, he was reading aloud to me as I listened; my oldest son was talking to my husband who then came out and started asking questions. I lost my shit a little, I didn’t realize I was yelling in response until my husband said something, all I knew was that I was trying to focus my attention on one thing and then I was overwhelmed with sound.

For people who don’t have this issue think nails grating on a chalkboard (though that sound doesn’t bother me, probably from nerve damage in my ears), in addition to the feeling of that sound think of something that gives you uncontrollable shivers down your spine and go ahead and throw in some heart racing chest pain inducing feeling. I can’t speak for all people with sensory issues, but that is what it feels like to me. It’s terrible, when it’s happening I just want it to stop, but you cannot control the sound of everything around you if there are other people involved.

My therapist is always telling me to take deep breaths, mostly when stress hits me or my PTSD kicks up. It is a hard thing to remember to do, especially when panic sets in because your body has decided to revolt its surroundings. This thing happens to me way more than I would like, well actually I would like it to never happen so I guess that I would like to be able to control when. If I go out to dinner with my husband, the sound can become too much, out with the kids, or play dates, social events. The problem is that it is not consistent, it’s not every single time there is sound or only when I am doing a certain thing.

If you know someone with sensory issues, take a beat, they may be snappy because their body just attacked them and they can’t handle anything else at the moment. Ask before touching, because I have even had to explain to my kids that “light” touches are actually painful to me as it sets my nerves on fire.